Assess Quality of Life of Children with Beta Thalassemia Major | ||
| Port Said Scientific Journal of Nursing | ||
| Article 7, Volume 6, Issue 1, June 2019, Pages 121-138 PDF (625.22 K) | ||
| Document Type: Original Article | ||
| DOI: 10.21608/pssjn.2019.34698 | ||
| Authors | ||
| Amal Ahmed Khalil1; Mohamed Mahmoud Sarhan2; Nagwa Rizk Mohammed3; Neveen Moheb Mohammed Gomah* 4 | ||
| 1Professor of Pediatric Nursing,Faculty of Nursing,Port Said University | ||
| 2Professor of Pediatric Medicine, Faculty of Medicine,Mansoura University | ||
| 3Lecturer of Pediatric Nursing,Faculty of Nursing,Port Said University | ||
| 4Clinical Instructor at Technical Institute of Nursing, al- Azhar University in Damietta city | ||
| Abstract | ||
| Background: It is imperative to know further about QOL in children to assess and improve the care that they receive. Quality of life varies from other forms of medical assessments in that it emphases on the people's own opinions of their welfare and other features of life. Aim of study: Assess the quality of life among children with beta-thalassemia. Design: A descriptive research design was utilized in this study. Setting: the study was carried out at the outpatient hematology clinic at Mansoura University children's hospital in Dakahlia governorate. Sample: the study sample was collected from 124 children with beta thalassemia major. Results: Almost all the studied children who complied with blood transfusion had low QOL. Also, the majority compliant with chelation therapy had lowQOL. The studied thalassemic children experienced moderate QOL related to physical, emotional, and school functioning and experienced high QOL regarding social functioning. Conclusion: the highest percentage of the studied children had moderate levels of QOL. There was a statistically significant association between children's QOL and their knowledge. Moreover, there was a positive relation between children's ages and their total scores of QOL. Recommendation: regularand continuous health education programs are essential for children suffering from beta thalassemia and their mothers. | ||
| Keywords | ||
| quality of life; beta thalassemia major children | ||
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