Quality of Life Among Children Suffering From Congenital Heart Disease | ||
| Egyptian Journal of Health Care | ||
| Article 15, Volume 7, Issue 3, September 2016, Pages 208-219 PDF (517.19 K) | ||
| Document Type: Original Article | ||
| DOI: 10.21608/ejhc.2016.54608 | ||
| Authors | ||
| Manal Mahmoud Sayeh; Seham Guirgius Ragheb; Waleed Mohamed ELguindy; Rasmia Abd Elsttar Ali | ||
| Community Health Nursing Department, Faculty of Nursing Ain Shams University. | ||
| Abstract | ||
| Aim of the study: this study aimed to assess quality of life among children suffering from congenital heart disease. Research design: A descriptive design was utilized in this study. Setting: The study was conducted at cardio-pulmonary outpatient clinic in pediatric hospital at Ain Shams University. Sampling: A purposive sample.200children with their mothers. Tools of data collection: For data collection two tools were used: The first tool:- A pre-designed questionnaire contains Socio-demographic data of children, socio-demographic data of mothers and fathers, environmental assessment for children living in assessment of mother's knowledge about congenital heart disease, and assessment of mother's practice related to children needs and problems. The second tool includes Quality of life inventory scale was constructed to assess level of quality of life for children with congenital heart disease. Results: The finding of the present study revealed that; more than half of the studied children were females. The present study showed approximately half of the studied mothers start given weaning foods to their infant at the age of two. Conclusion: The Study concluded that there was a highly statistical significant relation between mother's age ,educational level and their total knowledge there was a highly statistical significant relation between mothers educational level and their total practice While, there was a highly statistical significant relation (P<0.001) between total knowledge and total QOL Recommendations: Periodic training programs for the congenitally heart children and their mothers about their disease, management and control to improve their knowledge and consequently their quality of life. Effort should be made to reduce the CHD complications among children through adopting a national strategies and plan of CHD. | ||
| Keywords | ||
| quality of life; Congenital heart disease; Mother's Knowledge; Community health Nursing roles | ||
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